Ovdje se nalaze organizacije i skupine za potporu zajednici oboljelih od Gaucherove bolesti.

Hrvatski savez za rijetke bolesti

Hrvatski Savez za rijetke bolesti (HSRB)

Ivanićgradska 38, 10 000 Zagreb | Tel: 0800 99 66

Posjetite rijetke-bolesti.hr

European Gaucher Alliance (EGA)

Europska udruga oboljelih od Gaucherove bolesti (European Gaucher Association, EGA)

Organizacija koja predstavlja interese bolesnika oboljelih od Gaucherove bolesti, skupina širom Europe i drugdje u svijetu.

Posjetite eurogaucher.org

Eurordis

EURORDIS

Nevladina organizacija bolesnika sastavljena od 695 udruga bolesnika u 63 zemlje.

Posjetite eurordis.org

Nadamo se kako će ovaj letak odgovoriti na pitanja o nasljeđivanju Gaucherove bolesti.
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Pogledajte kratki video o uzrocima Gaucherove bolesti.
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U ovom videu, bolesnici koji boluju od Gaucherove bolesti govore o tome kako im je bolest dijagnosticirana.
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Što su lizosomske bolesti nakupljanja?
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Posjetite Spotlight on Gaucher YouTube kanal kako biste pogledali informativne video priloge te priče bolesnika i njihovih obitelji o Gaucherovoj bolesti.
How is Gaucher disease diagnosed?
Symptoms Infographic
Symptoms Infographic
Preuzmite brošuru o Gaucherovoj bolesti radi korisnih informacija.

The information on this website is intended only to provide knowledge of Gaucher disease health topics. This information should not be used in place of advice from your GP or other healthcare professional. If in doubt please contact your doctor for advice.

Focusonfabry.com is intended for an International and US audience and has been produced by Shire. The website has been developed in accordance with industry and legal standards to provide information for the general public about Hunter Syndrome health topics. Shire makes every reasonable effort to include accurate and current information. However, the information provided on the website is not exhaustive.

Download the Gaucher disease toolkit for helpful information and questions to discuss with your doctor.
Symptoms Infographic